Supporting Family-based Care for Aged Patients with Chronic Illness

Supporting Family-based Care for Aged Patients with Chronic Illness

Lemai Nguyen (Deakin University, Australia)
Copyright: © 2011 |Pages: 16
DOI: 10.4018/978-1-61520-825-8.ch016
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Family carers play an important role in care for aged patients with chronic illness, particularly in home and community settings. The information needs of these family carers and their patients are poorly understood and current health information systems do not adequately support their needs. This chapter describes current models in understanding patient and family carer information needs and analyses technology solutions in a new field of consumer health informatics. The analysis shows that current technology solutions in consumer health informatics fail to effectively support aged people in their own management of chronic illness and as well failing to support their family carers. The chapter also identifies key research issues in developing technologies that support aged patients and family carers in chronic illness management.
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About 13 per cent of our Australian population is aged 65 years or older (Department for Health and Ageing, 2008). This is projected to rise to 18 per cent by 2021 and to 26 per cent (around 7 million people) in 2051. Healthy ageing and aged care have increasingly become an important, national issue. There is a wide range of social, health and economic aspects in ageing and aged care. One of many challenging aspects is how to cope with and manage the increasing incidence of chronic illness, for example depression, diabetes, heart disease, asthma, and various types of cancer. Morbidity and mortality related to major chronic diseases increase after 65 years of age (AIHW, 2006). Chronic illness, if not well managed, can become an expensive challenge (WHO, 2002). For optimum chronic illness management, an integrated hospital and home continuous care programme is required (ITTA-eHealth, 2004).

Hospital care involves high costs and is an inefficient use of care resources compared with preventative, primary or community care. Family carers play an important role in reducing costs associated with aged patients with chronic illness. Better understanding of and addressing the information needs of family carers is expected to provide significant benefits in providing chronic illness care for aged patients (Clayton, Butow, & Tattersall, 2005). Family carers not only provide home-based continuous care for aged patients but also often act as their proxy information seeker (Williamson & Asla, 2009). In addition to having a rich understanding of the patient-specific care needs, the family carer also has his/her own needs, for example, access to patient’s health information, knowledge about the patient’s illness and care instructions, and how to cope with emotions and stress associated with care (Docherty, et al., 2008). Inclusion of the information needs and information behaviours of the family carers in health information strategies and systems can be expected to provide significant benefits.

Consumer health informatics is a relatively new field that aims to understand and address the information needs of patients and their families, and empower them in health care planning, delivery and decision making (Altinkemer, De, & Ozdemir, 2006; Hersey, Matheson, & Lohr, 1997). Based on an analysis of the information needs of patients and family carers, especially in the context of home-based aged care, this chapter reviews and discusses current technologies used in consumer health informatics. A research programme will be described to support family-based care by addressing the information needs of aged patients and family carers.

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Editorial Advisory Board
Table of Contents
Rhonda Nay
Jeffrey Soar, Rick Swindell, Philip Tsang
Jeffrey Soar, Rick Swindell, Philip Tsang
Chapter 1
Neil W. Bergmann
Ubiquitous computing technology (ICT) shows great potential in supporting the infirm elderly, and others managing complex health issues, to live... Sample PDF
Ubiquitous Computing for Independent Living
Chapter 2
Jeffrey Soar
This chapter explores ageing, chronic disease, technology and social change. Healthcare has been transformed through medical technology but there is... Sample PDF
Ageing, Chronic Disease, Technology, and Smart Homes: An Australian Perspective
Chapter 3
Andrew Sixsmith, Sonja Mueller, Felicitas Lull, Michael Klein, Ilse Bierhoff, Sarah Delaney, Paula Byrne, Sandra Sproll, Robert Savage, Elena Avatangelou
This chapter describes some of the results of the EU-funded SOPRANO project to develop an Ambient Assisted Living system to promote active ageing... Sample PDF
A User-Driven Approach to Developing Ambient Assisted Living Systems for Older People: The SOPRANO Project
Chapter 4
Rose A. Kenny, Cliodhna Ni Scanaill, Michael McGrath
Approximately 1 in 3 people over the age of 65 fall each year; therefore it is of little surprise that falling is often accepted as a natural part... Sample PDF
Falls Prevention in the Home: Challenges for New Technologies
Chapter 5
Claire Huijnen
This chapter presents the research, results and lessons learned from a project to evaluate currently available assisted living technologies for... Sample PDF
The Use of Assistive Technology to Support the Wellbeing and Independence of People with Memory Impairments
Chapter 6
Gottfried Zimmermann, Jan Alexandersson, Cristina Buiza, Elena Urdaneta, Unai Diaz, Eduardo Carrasco, Martin Klima, Alexander Pfalzgraf
“Pluggable user interfaces” is a software concept that facilitates adaptation and substitution of user interfaces and their components due to... Sample PDF
Meeting the Needs of Diverse User Groups: Benefits and Costs of Pluggable User Interfaces in Designing for Older People and People with Cognitive Impairments
Chapter 7
Samuel N. Cubero
This chapter describes the mechanical design, manufacture and performance of a three-degree-of-freedom manipulator arm and gripper that can be... Sample PDF
A Robotic Arm for Electric Scooters
Chapter 8
Nancy A. Pachana, Emma E. Poulsen
This chapter aims to examine the adoption of technology by older adults within a framework of current gerontological theories and research.... Sample PDF
Thinking Outside the Box: Novel Uses of Technology to Promote Well-Being in Older Populations
Chapter 9
Rick Swindell, Peter Grimbeek, Jan Heffernan
Population aging is refocusing aging policy away from mainly remedial actions towards low cost preventative interventions that keep older people... Sample PDF
U3A Online and Successful Aging: A Smart Way to Help Bridge the Grey Digital Divide
Chapter 10
Donghee Han, Kathryn L. Braun
By 2050, people aged 60 and older will comprise 33% of Korea’s population, up from about 12% currently. In many occupational sectors, women retire... Sample PDF
Promoting Active Ageing through Technology Training in Korea
Chapter 11
Christopher G. Hatherly
This chapter covers current and future technologies relevant to older drivers. It does this using a systems framework, reviewing research and issues... Sample PDF
Intelligent Transportation Systems for Older Drivers: A Systems Approach to Improving Safety and Extending Driving Longevity
Chapter 12
John Heng, Subhasis Banerji
Contrary to expectations, assistive technology (AT) usage by the elderly has not increased in proportion to availability and ease of access. This is... Sample PDF
Low Usage of Intelligent Technologies by the Aged: New Initiatives to Bridge the Digital Divide
Chapter 13
Hong Sun, Vincenzo De Florio, Ning Gui, Chris Blondia
Efficient and cost-effective solutions are needed to meet the demands for services required by an ever increasing number of users. We discuss the... Sample PDF
Building a Mutual Assistance Community for Elderly People
Chapter 14
James Barrientos, Michele Barry
Australia’s ageing population has escalated the demand for current health services and the trend could compound to unsustainable levels under the... Sample PDF
Preventative Healthcare: A Proposed Holistic Assistive Technology Model based on Industry Practice
Chapter 15
Lorenza Tiberio, Massimiliano Scopelliti, Maria Vittoria Giuliani
Nursing homes provide long-term care services and can help preserve the quality of life of elderly people subject to physical and cognitive... Sample PDF
Attitudes Toward Intelligent Technologies: Elderly People and Caregivers in Nursing Homes
Chapter 16
Lemai Nguyen
Family carers play an important role in care for aged patients with chronic illness, particularly in home and community settings. The information... Sample PDF
Supporting Family-based Care for Aged Patients with Chronic Illness
Chapter 17
Sisira Edirippulige, Rohana Marasinghe
The rapidly growing aged population is challenging conventional methods of care provision. Global ageing, combined with other challenges, has... Sample PDF
Telenursing in Aged-Care: Systematic Evidence of Practice
Chapter 18
Seungwon Jeong, Yusuke Inoue
This chapter looks into the systems and institutions for the elderly population covered by long-term care insurance in Japan and the Republic of... Sample PDF
Health Insurance Systems as Models for Managing the Increasing Elderly Populations of Japan and Korea
Chapter 19
Szu-Yao (Zoe) Wang
The social structure in Taiwan has changed dramatically in the last twenty years. An increasing population of people aged over 65, a decreasing... Sample PDF
Assistive Technologies as Aids to Family Caregivers in Taiwan
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