Struggles of a Child with ID and Their Family Members: The Child's and Their Family's Difficulties and Factors Affecting Their Well-Being

Struggles of a Child with ID and Their Family Members: The Child's and Their Family's Difficulties and Factors Affecting Their Well-Being

Aili Hanim Hashim (University Malaya, Malaysia), Manveen Kaur Sachdev (University Malaya, Malaysia), Norharlina Bahar (Selayang Hospital, Malaysia) and Wan Salwina Wan Ismail (Universiti Kebangsaan Malaysia, Malaysia)
DOI: 10.4018/978-1-7998-1223-4.ch004

Abstract

There are many children with intellectual disability (ID) in recent years. The increase in numbers reflects the knowledge regarding the issue, thus creating awareness and increased detection for children for any developmental delay. Consequently, medical services are seeing and treating younger cohorts. Their disability may be mild to moderate, making it difficult even for medical professionals to identify these children. Invariably all parents want to have healthy, intelligent, and capable children who can achieve independence and a successful life. The reality is that parents having children with ID often struggle to understand what is happening with their child, what more how to cope with and help their child. Added to their distress is that even professionals dealing with the children and their family have various ideas and beliefs regarding this issue. Identifying families who are struggling and offering them the appropriate advice is essential as these families need proper guidance and services for their child.
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Understanding Children With Intellectual Disability

Intelligence or the individual’s mental capacity is essential to all humans. Human intelligence is vital for one’s mental functioning. We need our intelligence to acquire and apply the knowledge, ideas and consequently develop further and appropriate thoughts, opinions and acquire skills to help us think, ascertain and deal with things around us effectively.

Many more children with intellectual disability (ID)1 are surviving now than they did a century ago (DeWeaver and Kropf, 1992). Intellectual disability is a state whereby the individuals have a varying degree of impairments in their mental abilities with consequence on their learning, performance and adaptive functioning (American Psychiatric Association, 2013; American Association on Intellectual & Developmental Disabilities, 2012). Humans need an adequate level of intelligence to be able to function independently. They need an adequate level of intelligence to regulate themselves accordingly and to manage their various tasks and challenges effectively.

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