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What is Genetic Risk

Chapter 30
Handbook of Research on Technoethics
Revealed and quantified by assessment of family history and/or by genetic testing, a genetic risk may, in exceptional cases, indicate with certainty that the individual will develop a specific disease but at unknown time, or, most of the time, merely indicate that the individual may be particularly predisposed or susceptible to develop a specific disease if exposed to specific chemicals, aliments, or lifestyle.
Published in Chapter:
Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era
Antoinette Rouvroy (European University Institute, Italy)
Copyright: © 2009 |Pages: 20
DOI: 10.4018/978-1-60566-022-6.ch030
Abstract
The aim of the present chapter is to elucidate the paradoxical position of the individual legal subject in the context of human genetics. It first discusses the assumed individual “right to know” and “right not to know” about genetic susceptibilities, predispositions and risks when genetic tests exist, and assess the usual assumption according to which more information necessarily increases liberty and enhances autonomy. A second section is dedicated to the issues of confidentiality, intra-familial disclosure and familial management of genetic information. The idea is suggested that those issues challenge the fundamental liberal unit of the individual traditionally understood as a stable, unitary, embodied entity.
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