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What is Network of Caregivers

Handbook of Research on Democratic Strategies and Citizen-Centered E-Government Services
The set of caregiver of a patient that is taking part and provides care to the patient through the eHealth system.
Published in Chapter:
Privacy-Friendly Management of Electronic Health Records in the eHealth Context
Milica Milutinovic (KU Leuven, Belgium) and Bart De Decker (KU Leuven, Belgium)
DOI: 10.4018/978-1-4666-7266-6.ch014
Abstract
Electronic Health Records (EHRs) are becoming the ubiquitous technology for managing patients' records in many countries. They allow for easier transfer and analysis of patient data on a large scale. However, privacy concerns linked to this technology are emerging. Namely, patients rarely fully understand how EHRs are managed. Additionally, the records are not necessarily stored within the organization where the patient is receiving her healthcare. This service may be delegated to a remote provider, and it is not always clear which health-provisioning entities have access to this data. Therefore, in this chapter the authors propose an alternative where users can keep and manage their records in their existing eHealth systems. The approach is user-centric and enables the patients to have better control over their data while still allowing for special measures to be taken in case of emergency situations with the goal of providing the required care to the patient.
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