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Parents as Advocates for Children with IBD at School

Parents as Advocates for Children with IBD at School

Maria Gordon
Copyright: © 2016 |Pages: 13
ISBN13: 9781466694521|ISBN10: 1466694521|EISBN13: 9781466694538
DOI: 10.4018/978-1-4666-9452-1.ch007
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MLA

Gordon, Maria. "Parents as Advocates for Children with IBD at School." Challenges Surrounding the Education of Children with Chronic Diseases, edited by Maria Gordon, IGI Global, 2016, pp. 138-150. https://doi.org/10.4018/978-1-4666-9452-1.ch007

APA

Gordon, M. (2016). Parents as Advocates for Children with IBD at School. In M. Gordon (Ed.), Challenges Surrounding the Education of Children with Chronic Diseases (pp. 138-150). IGI Global. https://doi.org/10.4018/978-1-4666-9452-1.ch007

Chicago

Gordon, Maria. "Parents as Advocates for Children with IBD at School." In Challenges Surrounding the Education of Children with Chronic Diseases, edited by Maria Gordon, 138-150. Hershey, PA: IGI Global, 2016. https://doi.org/10.4018/978-1-4666-9452-1.ch007

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Abstract

Inflammatory Bowel Disease (IBD) is an “invisible” chronic illness, which is largely internal without significant observable external symptoms. Children with IBD experience painful and fluctuating physical symptoms caused by intestinal inflammation, as well as side effects from the medications. As a result, they necessitate special accommodations while they are in school. The Quebec Education Act (2010) stipulates that adequate services for a diverse student population must be provided. A case study conducted by Gordon (2013) with five families that participated in individual, semi-structured interviews revealed that families with a child with IBD functioned relatively well. These outcomes are contrary to the literature on families of children with disabilities. However, in Quebec public schools, parents and their children experienced teachers who lacked awareness of IBD and who provided insufficient classroom support. Hence, parents-(predominantly mothers) played an integral role in advocating for necessary accommodations on their child's behalf. This chapter will present the parents' school experiences and conclude with practical recommendations for teachers and families.

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