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Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era

Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era

Antoinette Rouvroy
Copyright: © 2009 |Pages: 20
ISBN13: 9781605660226|ISBN10: 1605660221|EISBN13: 9781605660233
DOI: 10.4018/978-1-60566-022-6.ch030
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MLA

Rouvroy, Antoinette. "Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era." Handbook of Research on Technoethics, edited by Rocci Luppicini and Rebecca Adell, IGI Global, 2009, pp. 454-473. https://doi.org/10.4018/978-1-60566-022-6.ch030

APA

Rouvroy, A. (2009). Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era. In R. Luppicini & R. Adell (Eds.), Handbook of Research on Technoethics (pp. 454-473). IGI Global. https://doi.org/10.4018/978-1-60566-022-6.ch030

Chicago

Rouvroy, Antoinette. "Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era." In Handbook of Research on Technoethics, edited by Rocci Luppicini and Rebecca Adell, 454-473. Hershey, PA: IGI Global, 2009. https://doi.org/10.4018/978-1-60566-022-6.ch030

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Abstract

The aim of the present chapter is to elucidate the paradoxical position of the individual legal subject in the context of human genetics. It first discusses the assumed individual “right to know” and “right not to know” about genetic susceptibilities, predispositions and risks when genetic tests exist, and assess the usual assumption according to which more information necessarily increases liberty and enhances autonomy. A second section is dedicated to the issues of confidentiality, intra-familial disclosure and familial management of genetic information. The idea is suggested that those issues challenge the fundamental liberal unit of the individual traditionally understood as a stable, unitary, embodied entity.

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