Open Information Management in User-driven Health Care

Abstract

This chapter discusses the role of open health information management in the the development of a novel, adaptable mixed-platform for supporting health care informational needs. This platform enables clients (patient users) requiring healthcare to enter an unstructured but detailed account of their dayto- day health information requirements that may be structured into a lifetime electronic health record. It illustrates the discussion with an operational model and a pilot project in order to begin to explore the potential of a collaborative network of patient and health professional users to support the provision of health care services, and helping to effectively engage patient users with their own healthcare. Such a solution has the potential to allow both patient and health professional users to produce useful materials, to contribute to improved social health outcomes in terms of health education and primary disease prevention, and to address both pre-treatment and post-treatment phases of illness that are often neglected in the context of overburdened support services.