Smart Lifelogging Technology for Episodic Memory Support

Smart Lifelogging Technology for Episodic Memory Support

Matthew L. Lee (Carnegie Mellon, USA) and Anind K. Dey (Carnegie Mellon, USA)
DOI: 10.4018/978-1-60960-180-5.ch005
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Recent episodic memory impairment (EMI) affects over 26 million individuals with Alzheimer’s disease. Smart lifelogging technologies can capture a log of the user’s personal experience using wearable or embedded recording devices and present elements of that log as cues that can support memory recollection for people with EMI. In this chapter, the authors describe their design process for developing and evaluating a smart lifelogging system specifically designed to help people with mild EMI remember their experiences better and reduce the burden on their caregivers. The authors’ design process includes two formative field studies to understand both what lifelogging data is most effective for supporting memory and how to present these data. The authors found that their self-guided approach was more effective at supporting people’s ability to retain a detailed memory of their experiences, to feel more confident about their memory abilities, and to reduce the additional burden placed on the caregiver than a caregiver-guided approach.
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We depend on our episodic memory to help us remember our recent experiences. We can remember having a good conversation with a close friend last week and can pick up where the conversation left off. We can remember buying milk and bananas from the market in the morning so we do not have go out and buy them again in the afternoon. We can remember having dinner at a new restaurant and can relive the experience of how delicious the food tasted by simply thinking about it. We can remember spending an evening reading a favorite book in the safety and comfort of our home. Recent episodic memory supports our sense of self (Clare 2003) by enabling us to mentally travel back in time and relive our pleasant experiences and to feel socially and physically engaged in our lives.

Episodic memory impairment (EMI) is the main symptom associated with Alzheimer’s disease, a common neurodegenerative disease that affects over 26 million people worldwide, with this number expected to quadruple by 2050 (Alzheimer’s Association, 2008). Recent episodic memory impairment dramatically changes the lives of individuals with the impairment. Individuals struggle with the need to constantly readjust their own expectations of what they can and can no longer remember. EMI can lead to a loss of autonomy and control in individuals’ lives, resulting in feelings of uncertainty, irritation, and frustration as they attempt to compensate for their memory loss but repeatedly fail. They may withdraw from interacting socially with others to avoid appearing incompetent and as a result may even develop depression (Steeman, DeCasterle, Godderis, & Grypodonck, 2006). They must rely on others for support and often must repetitively ask their family caregivers (such as a spouse or an adult child) for information about current and recent events. The lives of their family caregivers are also dramatically changed as caregivers become overburdened with providing support for both the cognitive and physical needs of their loved one and can themselves develop depression or burnout which can lead to reduced quality of care (Almbert, Grafstrom, & Winblad, 1997). Thus, individuals with EMI and their caregivers struggle to regain a sense of normalcy—how things were before the onset of the disease—in their lives (Butcher, Holkup, & Buckwalter, 2001; Clare 2003). In other words, their ideal situation would be to turn back the clock and live in a time before the disease changed their lives, when their lives were “normal.” Restoring normalcy in their now changed lives involves restoring the memory abilities and independence that the disease took away from them.

Complete Chapter List

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Editorial Advisory Board and List of Reviewers
Table of Contents
Carsten Röcker, Martina Ziefle
Carsten Röcker, Martina Ziefle
Chapter 1
Konstantinos Perakis, Dimitris Koutsouris
The proposed chapter aims to provide a discussion on the issue of the utilization of wireless technologies, for the deployment of monitoring... Sample PDF
Wireless Networking Credibility, Device Interoperability & Other Important Issues to Take Into Consideration for the Deployment of a Homecare Service Provision Model
Chapter 2
Zhilbert Tafa
Advances in wireless sensor networking (WSN) have opened up new opportunities in distributed informatics. Pervasive healthcare, based on WSN, is an... Sample PDF
Sensor Networks in Pervasive Healthcare Computing
Chapter 3
Paul Fergus, Mark Taylor, John Haggerty, Lorna Bracegirdle, Madjid Merabti
The evolution of wireless network protocols such as Bluetooth and ZigBee, and the reducing size, cost (and power consumption) of small scale sensor... Sample PDF
Next Generation Body Area Networks and Smart Environments for Healthcare
Chapter 4
Henrik Enquist
The objective of the case study presented here was to develop and investigate the use of a novel e-health technology called the Memory Stone. This... Sample PDF
From Idea to Use: Lessons Learned From a Participatory ICT Healthcare Case Study
Chapter 5
Matthew L. Lee, Anind K. Dey
Recent episodic memory impairment (EMI) affects over 26 million individuals with Alzheimer’s disease. Smart lifelogging technologies can capture a... Sample PDF
Smart Lifelogging Technology for Episodic Memory Support
Chapter 6
Nirmalya Roy, Sajal K. Das, Christine Julien
Pervasive computing applications envision sensor rich computing and networking environments that can capture various types of contexts of... Sample PDF
Resolving and Mediating Ambiguous Contexts in Pervasive Environments
Chapter 7
Carlos Ferraz, Juliana Diniz
In health service environments, support to mobility is an important issue, given that the mobility of the medical professionals is inherent to the... Sample PDF
Supporting the Ubiquitous Doctor
Chapter 8
Yusuf Ozturk, Jayesh Sharma
Pervasive care and chronic disease management to reduce institutionalization is a priority for most western countries. The realization of next... Sample PDF
mVITAL: A Standards Compliant Vital Sign Monitor
Chapter 9
Vasso Koufi, Flora Malamateniou, George Vassilacopoulos
Homecare is an important component of the continuum of care as it provides the potential to improve quality of life and quality of healthcare... Sample PDF
A Highly-Interactive and User-Friendly PHR Application for the Provision of Homecare Services
Chapter 10
John F. Duncan, L. Jean Camp, William R. Hazlewood
The authors describe an innovative monitoring system designed for elder care. This system is an example of privacy-aware design that addresses... Sample PDF
The Portal Monitor: A Privacy-Aware Event-Driven System for Elder Care
Chapter 11
Bert Bongers, Stuart Smith
This chapter outlines a Human-Computer Interaction inspired approach to rehabilitation of neurological damage (e.g. spinal cord injury) that employs... Sample PDF
Interactivating Rehabilitation through Active Multimodal Feedback and Guidance
Chapter 12
Ainara Garzo, Stefan P. Carmien, Xabier Madina
Accessibility is a critical aspect of health care system design, particularly E-health systems. Ability to access services may change as ones... Sample PDF
Mapping Input Technology to Ability
Chapter 13
Maria Júlia S. Benini, Marijn Bruinink, Atike D. Pekel, Walter A. Talbott, Albertine Visser, Panos Markopoulos
Bilateral vestibular loss (BVL) is a disorder of the balance sensory organs in the inner ear; it can cause falls which may have grave consequences... Sample PDF
Restoring Balance: Replacing the Vestibular Sense with Wearable Vibrotactile Feedback
Chapter 14
Kenneth J. Turner
The world-wide problem of an ageing population is introduced. This will require older people to be looked after for longer in their own homes. A... Sample PDF
A Home-Based System to support Delivery of Health and Social Care
About the Contributors