User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies

User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies

Rakesh Biswas (People’s College of Medical Sciences, India) and Carmel Mary Martin (Northern Ontario School of Medicine, Canada)
Indexed In: SCOPUS
Release Date: October, 2010|Copyright: © 2011 |Pages: 642
DOI: 10.4018/978-1-60960-097-6
ISBN13: 9781609600976|ISBN10: 1609600975|EISBN13: 9781609600990
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Description & Coverage
Description:

E-healthcare, Health 2.0, and user driven healthcare are steadily increasing in popularity among patients and healthcare professionals. In spite of this, there is surprisingly little written about the wealth of information available on the Web created by individual healthcare users, in terms of their experiential disease narratives, potential learning, and improved healthcare results.

User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies fills this gap by exploring various individual user driven strategies that move towards solving multiple clinical system problems in healthcare, utilizing real life examples. Documenting individual concrete experiences, reflective observations, abstract conceptualizations and particular instances of active experimentation, this text is a valuable resource not only for the healthcare academic community, but patients interested in social networking to improve their own healthcare outcomes.

Coverage:

The many academic areas covered in this publication include, but are not limited to:

  • Community ontologies in user driven healthcare
  • Medical education with Web 2.0
  • Online health community organizations
  • online health education
  • Online learning in discussion groups
  • Patient Journey Record Systems
  • Personal Narratives and Implications for Social Networking
  • Social constructions of chronic diseases
  • Social Networks for Health Innovation
  • Transplant Medicine 2.0
  • Ubiquitous Information Therapy
Reviews & Statements

"The strength of the book lies in personal stories and stories (conversations) about how to interact with other doctors, health professionals, and patients, both face to face and using the Internet. The detailed table of contents at the beginning will help the reader decide which chapters to read and in which order. [...] The book caters to a wide range of readers, from physicians, other health personnel, patients, other academics, and interested lay readers. The editors are to be congratulated on their work and the publishers for their high standards."

– P. Ravi Shankar, MD, KIST Medical College in Lalitpur, Nepal. The Pharos (Autumn 2011).

As doctor-driven medicine sinks into disreputable old age, user-driven medicine is the hope of the future. This transition is already taking place across the world, and doctors and other health professionals should welcome it and play a creative role in shaping it. This book is a beginning in that process: a collecting together of materials, of stories, of insights, of ways of thinking, of problems and potential solutions, from users (patients" - a word which needs to disappear) and from health professionals. A new kind of shared health care will emerge out of the current chaos not by the imposition of a single will, but through the shaping that emerges spontaneously from the creative efforts of many individuals and many different forces. The unprecedented privilege of our time is that we can each participate in this on a global scale, and this book is one illustration of how this process can get started."

– Richard Lehman, Oxford University, UK

... A global group of contributors working in communication, public health, medicine, mental health, education, and other fields, as well as patients themselves, discuss how patients are joining networks, locating other patients or professionals, and exchanging narratives of their experiences in healthcare, and how this is improving outcomes in healthcare in areas like hematology, gastroenterology, and chronic disease. They also relate how different factors influence doctors and inform their understanding of the patient narrative, and how tools like patient records can be used. ...

– Sci Tech Book News, BookNews.com

Overall, this book covers an important subject and introduces readers to a variety of topics within the broad areas of narrative medicine and user-driven healthcare.

– Lisa Ennis, MA, MS, University of Alabama at Birmingham. Doody's Book Review .
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Editor/Author Biographies

Rakesh Biswas MD is a professor of Medicine in LN Medical College and Research Center, Bhopal, India. His interests include clinical problem solving applied to patient centered health care and health education. He has in the past shared his experiences in clinical problem solving extensively through global academic journals and books and is a founding editor of International Journal of User Driven healthcare, regional editor for the Journal of Evaluation in Clinical Practice, UK as well as board member of BMJ case reports, UK.

He is currently engaged in developing a health care blended-learning ecosystem through a network of global multiple learner stakeholders that includes medical student and health professionals from diverse disciplines. It also includes patients along with their relatives in rural and urban India so that they may benefit from this global learning toward their local caring. His primary focus is on optimization of costs in a manner that can still provide highest quality of care in low resource settings.

As all these stakeholders are computer users communicating through the web with a user name the network is also known as 'User Driven Health Care' UDHC network. More here: http://www.udhc.co.in/

The network has currently piloted in rural and urban Indian locations with encouraging responses from patients, medical students and global health professionals connected through the web. The network eventually hopes to propagate 'patient centered learning in India such that medical students and health professionals take pride in their teamwork toward making a positive change in their patients' lives. It hopes to in this manner utilize patient centered learning to build a vital bridge between basic and clinical science professionals that may translate bedside patient needs to solutions from the bench.

Carmel Mary Martin is an Associate Professor of Family Medicine at the Northern Ontario School of Medicine and Visiting Professor, University of Buckingham, UK and Visiting Research Fellow Department of Public Health and Primary Care, Trinity College, Dublin. She is active in clinical general practice with a particular interest in chronic disease and illness, patient centered care and complex systems. Carmel has a large volume of publications around this area and she also edits a journal section on Complexity in the Health Sciences for the Journal of Evaluation in Clinical Practice, UK. Carmel is a lead Clinical Principal Investigator on the Patient Journey Record Program in user driven healthcare at the National Digital Research Center NDRC, an independent organization formed by a consortium of members comprising different academic institutes in Dublin.
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Editorial Advisory Board
  • Joachim Sturmberg, Monash and Newcastle University, Australia
  • Stefan Topolski, U. of Massachusetts School of Medicine, USA
  • Suptendra Nath Sarbadhikari, Head, Biomedical Informatics, Coimbatore, India
  • Joan Young, Independent Researcher, Rockville, Maryland, USA
  • Anjan K Das, Clinical Research Leader, Stempeutics Research, KL, Malaysia
  • Andrew Miles, University of Buckingham, London Campus, UK