A Mobile Health Application for Monitoring Children With Autism Spectrum Disorder: ASD Monitoring by mHealth

A Mobile Health Application for Monitoring Children With Autism Spectrum Disorder: ASD Monitoring by mHealth

Masud Rabbani, Munirul M. Haque, Dipranjan Das Dipal, Md Ishrak Islam Zarif, Anik Iqbal, Shaheen Akhter, Shahana Parveen, Mohammad Rasel, Tanjir Rashid Soron, Naveen Bansal, Amy Schwichtenberg, Syed Ishtiaque Ahmed, Sheikh Iqbal Ahamed
Copyright: © 2022 |Pages: 26
DOI: 10.4018/978-1-6684-2304-2.ch002
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Abstract

Currently, one out of 160 children have autism spectrum disorder (ASD) in the world. This problem is observed in both developed and low-middle-income countries (LMICs) around the globe. Usually, in developed countries, the number can be estimated, but in LMICs, this number is largely unknown, and in some cases, many children with ASD are not treated after identification of the problem. In these cases, both for the developed and LMICs, mobile technology can continuously monitor children with ASD. In this chapter, the authors describe the techniques of remote monitoring of the behavioral and milestone parameters development for children with ASD that care practitioners can use as an evidence-based tool to make the decision in the treatment process. Lastly, the authors describe the advantages and challenges of using the mHealth tools in the ASD treatment based on the NIH-funded successful completion project “mCARE” in Bangladesh.
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Introduction

Autism Spectrum Disorder was first identified as the children's behavior (Kanner, 1968) by Kanner in 1943. Later it was recognized as children’s neurodevelopmental disorder which is also known as “Autism Spectrum Disorder” or “ASD.” Consistently, it creates a global problem, (Wallace et al., 2016), and people of all societal levels suffer from ASD (Organization, 2021). Now, Autism Spectrum Disorder is a heterogeneous disorder (Tariq et al., 2019), and all socioeconomic, racial, and ethnic groups in the world are impacted by autism.(Services, 2020; Therapy, 2021; Wallace et al., 2016) In 2020, worldwide, around one in 160 children had ASD (Elsabbagh et al., 2012; Organization, 2021), whereas, in the USA, the rate is one in 54. (A., 2020; DiGuiseppi et al., 2016; Maenner et al., 2020) Figure 1 shows the autism outbreak rate from 2004 to 2020 in the USA.(SARRC, 2021; Speaks, 2020) From the Figure 1, it can be seen that in the USA, in 2004, one ASD child was found on 166, whereas in 2020, this rate was one in 54. Currently, over 3.5 million people in the USA are taking autism diagnoses, and its cost is sometimes other one's lifespan. In 2015, in the USA, the diagnosis cost was $268 billion, and it is expected this cost will be reached to $461 billion by 2025.(Therapy, 2021) But it is a matter of regret that a family has ASD children mostly subject to stigma, discrimination, and human rights violation (Organization, 2021),46% of ASD children do not get the proper treatment even after identifying the ASD.(Happé et al., 2016) In developing countries, this scenario is worse, where they even know the “Autism Spectrum Disorder” term. (Therapy, 2021) Integrating the mHealth technology in this area can improve this situation and reduce the diagnosis cost. (Haque et al., 2020; Haque et al., 2021; Maples-Keller et al., 2017).

Figure 1.

Autism prevalence rate in the USA from 2004 to 2020 (SARRC, 2021; Speaks, 2020)

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At present, mobile technology or mHealth is largely used in the early recognition or identification of the autism symbols or autism level in the children’s' early age. Many mobile or web-based apps (Barbaro & Halder, 2016; Chakrabarti, 2009; Crais et al., 2006; Eaves & Ho, 2004; Guthrie et al., 2013; Webb & Jones, 2009; Zwaigenbaum et al., 2015) are now available online, where both caregiver and care practitioner can take the mHealth advantages from these mobile apps. Also, some other self-reported autism development tracker apps are available to track the development of children with ASD. In this chapter, the authors propose a new and innovative mobile-based and primary caregiver-reported application, where the children's (with ASD) longitudinal behavioral and milestone parameters are being tracked and monitored remotely by the care practitioners. These longitudinal data will then be shown graphically to the care practitioners so that the children's development can be easily visualized to the clinical or care professionals or care practitioners. By this system, the caregivers or parents will regularly get the update their children's developmental level by the app's report.

Key Terms in this Chapter

MP: Milestone Parameter or MP is the record of early age children's behavioral act.

VSD: Value Sensitive Design or VSD theory was also deployed for designing the mCARE app to ensure a robust, verifiable, and replicable strategy for cultural adoption.

MHealth: Mobile Health or mHealth is a set of mobile apps or devices that can be used to monitor or track diseases and provide information to the population, especially in remote areas.

mCARE: Mobile-Based Care or mCARE is an NIH-funded project to monitor children with ASD in Bangladesh by mHealth technology. This project was accomplished for one year to monitor behavioral and milestone parameter development.

Demography of Children With ASD: In a mHealth application, children's demography is very important to make proper evidence-based decisions in the treatment process.

RESM: Remote Experience Sampling Method or RESM theory was used to design the mCARE app to remote monitor children with ASD in urban and rural areas.

ASD: Autism Spectrum Disorder or ASD is the behavioral development disability among children's early age.

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