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What is Informational Capitalism

Handbook of Research on Technoethics
A contemporary political, economic and cultural tendency to perceive personal information as a basic resource (just as energy), an essential input to the management of public and private enterprises, as the most reliable element on which to build safety enhancement and efficiency strategies, and as a commodity, exchangeable on the “information market”.
Published in Chapter:
Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era
Antoinette Rouvroy (European University Institute, Italy)
Copyright: © 2009 |Pages: 20
DOI: 10.4018/978-1-60566-022-6.ch030
The aim of the present chapter is to elucidate the paradoxical position of the individual legal subject in the context of human genetics. It first discusses the assumed individual “right to know” and “right not to know” about genetic susceptibilities, predispositions and risks when genetic tests exist, and assess the usual assumption according to which more information necessarily increases liberty and enhances autonomy. A second section is dedicated to the issues of confidentiality, intra-familial disclosure and familial management of genetic information. The idea is suggested that those issues challenge the fundamental liberal unit of the individual traditionally understood as a stable, unitary, embodied entity.
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